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    « gathering of boston/new england area infertility bloggers? | Main | the honeymoon is over »

    Comments

    Lisa P.

    This sounds like a good plan, I think. I wish I could get the "we'll give you heparin anyway" line but I am hoping I'll be able to convince my new OB that since it won't hurt, it's a good idea. I'd hate to just be on baby aspirin and have miscarriage #3.

    Just curious, but did you ever get tested for Factor V Leiden or MTHFR? I had to sign consent forms for them both so I would think you'd know if you had. Factor V Leiden is apparently a BIG clotting risk, and while some docs think MTHFR (which I have) is only considered a risk if your homocysteine's high, it's good to know, regardless.

    pixi

    Yeah, I've had those tests; I'm quite sure I've had every possible clotting related test, and they're just not turning up anything. I'd still feel better, though, if my fertility doc were to recommend that we go ahead with the Heparin. I'm not sure that he will, though.

    Lori

    I hope your fertility doc goes along with the heparin. It certainly seems like there's something going on with clotting, not that I'm a medical professional of course. How frustrating the appointment and tests did not yield any conclusive answers.

    Nico

    I'm so, so sorry that your appointment didn't yield any answers. I know how much you were hoping that it would.

    And blown away by your visit to the office. That woman who came over to you? amazing.

    Meg

    It must be very frustrating not getting any concrete answers. I hope things work out with the asprin.

    Mary Scarlet

    Glad to hear a plan is forming even if you're still not 100% sure on the diagnosis. Like Nico, I'm amazed at the woman who reached out to you, what a generous soul.

    wessel

    Pixi, when you get pregnant again, immediately have the blood tests redrawn. Some women can have normal levels while in a non-pregnant state, but convert to abnormal while in a pregnant state. I believe I read that on Dr. Beer's reproductive immunology website. Also, antiphospholipid antibodies can fluctuate. I had one abnormal followed by two normal results.

    Or, just forget all that, and take heparin regardless when you get pregnant.

    pixi

    That's what I'm going to push for, but thanks also for the Dr. Beer lead. I hadn't even considered the possibily of different levels during pregnancy. Good thinking.

    Lisa P.

    Yeah, what wessel says is what I've seen too. My hematologist said that it's possible that estrogen can cause the blood to thicken, so that would make sense.

    Lynnette

    Wow. This was a very informative post. I'll keep you updated about my Hemadoc appointment (thanks for the comment). I don't want to suffer through 3 miscarriages to get to where you are...4 failed IVF's and a chemical are quite enough, thanks. So sorry about your losses.

    pixi

    Lynette, I'll definitely be keeping tabs on your progress. And, yeah, I'd say you've been through enough. Much too much, actually. Let's hope that 2006 brings an end to this heartache for all of us!

    fisher queen

    Oh sweetie. I wish there were some easy answers! I'm thinking of you.

    thalia

    Sorry that there's no easy answer here. But that's usually the case for us, isn't it? Well done for surviving the day.

    Vivien

    I have yet to be proven right, and it seemed to take forever to persuade the medics to give me first the test and then the 'cutting edge' medication, but PUSH PUSH PUSH them if you have the FEELING that the blood clotting is the cause of this. Heparin is reckoned to be safe, and there is so much they DON'T know anyway. Plus, the one thing they keep telling me is that the real help is the positive mindset (which is next to impossible to maintain after loss after loss). I have a BIG hunch that blood-thinning drugs are having positive effects that we don't know about.
    Best of luck Pixi. Hoping it will happen for us BOTH around Christmas!

    April

    Sorry that you didn't find something you could point to and say - "aha- that's it", but nonetheless hoping that they will be able to use this information to find a plan for you.

    Manuela

    ***smooch***

    Seeing that on your blog made my eyes well up! You're not supposed to do that!!! (wagging finger.)

    Jenn

    It's so frustrating to go through all that and not get any answers. I'm sorry for that, but happy there isn't another problem to deal with. I think. Sometimes I wonder if it's easier to work with problems than the unknown.

    Sparkle

    I went thru a miscarriage management program after 3 failed ivf's and a miscarriage (spontaneous). They put thru all the immunology and blood clotting tests. The only thing that showed up was slightly elevated levels for anticardiolipins (ACA). This was the 2nd test to show that up - it's pretty borderline. Now I have to do daily injections of heparin following ivf transfer.
    My doctor said the same thing wessel is suggesting, in cases like mine, blood should be tested immediately you find out you're pregnant, if the levels start rising at that time, then they prescribe heparin, because pregnancy does do something to the levels.
    Problem with us is that we're male factor - so have to do ivf to get pregnant!
    Good luck with all of this, your attitude is great.

    Karen

    It's so frustrating to go through so much testing without any concrete answers. It does seem as though certain clotting treatments are indicated for you, especially if they fall into the "can't hurt, might help" category. Good luck with your next steps.

    Tonya

    I had virtually the same hemadoc experience, sans the nice woman. Very sobering.

    I went the Dr. B route Wessel suggested, and after 3 losses am 7 wks pg. Currently on lovenox and low-dose aspirin, and can vouch for the fact that my whole system when haywire at implantation, everything that a week before had been fine, suddenly wasn't.

    Best wishes as you move forward again. And please follow your gut instinct; I finally did.

    mm

    Oh you've been through so much. I so hope that this doctor is the one who figures everything out.

    zhl

    Sorry that you didn't get the answers you wanted, but what a nice woman to encounter in the waiting room.

    Alexa

    I wish you had gotten some sort of definitive answer. If they won't give you the heparin (although really, I think they should), do have your levels checked when pregnant, as suggested by some of your other commenters. Some perfectly normal, non-clotting people are especially sensitive to estrogen, which can cause the blood to clot and have all sorts of effects on vasodilation. I get migraines from estrogen-based birth control for this same reason.
    I have my fingers crossed for you--"around christmas time" is coming up...

    T

    Lisa P and Wessel covered everything I was going to say - if your doctor won't go with heparin what about additional b6 and b12 at least? That's all I took for my mthfr (hetero). Sorry you didn't get more conclusive results.

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